Parseghian Foundation making headway for potential cures thanks to donations

Published: May. 31, 2017 at 4:01 PM EDT
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Niemann-Pick disease hits close to home for the Notre Dame community where research has long been underway in search of a cure.

After losing three of his four grandchildren to Niemann-Pick, former Notre Dame football coach Ara Parseghian vowed to fight the deadly disease that took his grandchildren.

We had a conversation with Ara a few years back to talk about his family's struggle after losing Michael, Marcia and Christa.

The Ara Parseghian medical research fund at Notre Dame is named in honor of the beloved coach.

Researchers are making headway in identifying potential treatments.

There is a young girl from Florida whose parents struggle with her having the rare disease. The video attached above explains their story.

If you would like to donate to the research fund at Notre Dame,