To her last breath, Dyan Orr fought for life.
"She's the toughest person I ever met," her dad Mike said just a few hours after her death. "She handled more pain than any human should have to."
The die-hard Notre Dame fan lost her battle with a rare disease Wednesday afternoon. She was 11 years old.
Funeral Services will be held Monday in Portage, Wisconsin. The Burial will be on Tuesday.
Only 200 people have ever been diagnosed with her condition in the United States.
She suffered from a lymphatic disorder and Gorham's Vanishing Bones Disease. The lymphatic disorder damaged her lungs while the Gorham's Disease ate away at her bones. By the end, nearly every organ in her body was affected.
"We are happy that she is no longer suffering and that she is pain free," Mike explained. "She is with my parents now. She has friends and company. I'm sure she is happy."
Dyan is from Portage, Wisconsin, but her father Mike grew up in South Bend. Because of that, she developed a fond appreciation of the Irish football team.
Her favorite player was Brady Quinn. When he heard about Dyan's condition a few months ago, he called her on the phone.
Dyan considered that phone call the greatest moment of her life.
Dyan would later send a photo of herself wearing a shirt with Brady Quinn's face on it to Brady. He autographed it and sent it back.
When the photo arrived, Dyan had one of her best days in weeks.
Just a few hours before she died Wednesday, her parents took her out of her hospital room and brought her to the gift shop. That's where she saw a familiar face.
"She saw Brady's picture on the Men's Health Magazine and that busted those little bright eyes open," Mike said with a tone of joy and sorrow.
Her dad and mom, Tonya, bought her the magazine.
"She just looked at him with adoring eyes just like she had looked at the picture he had signed for her," Mike explained.
Another one of Dyan's Irish favorites was Charlie Weis.
The Notre Dame head coach also called Dyan last month.
When the conversation was coming to a close, Dyan was sure to ask Weis how Hannah was doing. Hannah is Charlie's daughter who also suffers from a serious medical condition.
Dyan's body remains at the University of Wisconsin.
Before she died, she agreed to donate her body to medical research in the hopes of finding a cure for her rare disease.
Doctors will take a number of samples from Dyan's body in order to begin research immediately. They are able to test on every part of her body except her eyes.
Dyan asked for her eyes not to be touched so that she could see in heaven.
The family will hold visitations on Monday from 10AM to 1PM at Bethlehem Lutheran Church in Portage, Wisconsin. Funeral Services will follow.
A second visitation will be held on Tuesday morning at Schuette-Daniels Funeral home from 9AM to Noon in Burlington. The Burial will follow at St. Charles Cemetary, also in Burlington.
For more on the Dyan Orr foundation visit the website, which is linked beneath this story.
There is further video available on Dyan's story by clicking on the link below: