Autism: Understanding the Puzzle
Autism: Understanding the Puzzle Save Email Print
Posted: 12:04 AM Feb 6, 2008
Last Updated: 2:28 PM Feb 6, 2008
Reporter: Sarah Platt
Email Address: sarah.platt@wndu.com

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What do you think of when you hear names like Albert Einstein or Dan Aykroyd? It's likely Einstein's brilliance comes to mind and Aykroyd's comic timing. But did you know both the physicist and comedian had or have forms of autism?

Autism effects one in 150 children and is four times more likely in boys than in girls. It's a complex neurological disorder that impairs a person’s ability to communicate, a skill most of us take for granted.

Newscenter 16's Sarah Platt has a look at part one of our autism series, "Autism: Understanding the Puzzle."

The parents that Newscenter 16 interviewed for this story say it was a startling discovery to learn that their children had autism. It's a genetic disorder and what's interesting is just how wide the autism spectrum is. In the most severe cases, people are unable to function normally; while others are very high functioning, but might struggle with social skills.

Today, we introduce you to two families dealing with very different forms of autism.

Meet 7-year-old Patrick Cichoracki, a second grader at Bittersweet Elementary. At first glance, there are no noticeable signs of a disorder.

“He was 22 months old when we noticed he wasn't really talking, wasn't really trying to
talk, didn't say mommy or daddy, juice, cookie, we just assumed that was because he was an only child,” says Patrick’s mom, Laura Cichoracki.

But the problem, turned out to be much deeper than that. Patrick wasn't able to interact with his family or peers, like a prisoner in his own body.

Around age three, Patrick was diagnosed with autism. “For me, it was absolutely devastating, every dream I ever had for him went up in smoke, uncertainty of the future. My husband has been rather stoic about it. He's always been ‘he's going to be what he's going to be, we'll just role with the punches’,” says Cichoracki.

“When we first saw Patrick, he had no words. He had no way of communicating what he wanted other than screaming and pointing and getting upset and crying if he was unhappy,” says Patrick’s speech pathologist, Susanna McKinley.

Dan Ryan is Director of the Regional Autism Center at Logan in South Bend. He says autism cases seem to be on the rise, but it's unclear if that's because doctors are simply better at diagnosing the disorder or there's a scientific reason for the increase. “In addition to the increase in diagnostic availability, there really does seem to be something else, that perhaps is an environmental toxin that is somehow contributing to the increase in kids getting a diagnosis,” says Ryan.

A cause of autism? One widely debated theory is mercury in the vaccine preservative thimerosal may have contributed to the increase. However, there's no scientific proof on that.

The autism spectrum is something the Smous family of Bremen also knows. Angie and Steve Smous' 8-year-old son Ben was recently diagnosed with Asperger’s syndrome, a high functioning form of autism. “When he was in kindergarten, his teacher did say, 'Well, you might want to have him evaluated and she mentioned a couple symptoms',” says Angie Smous.

Like others with Asperger’s syndrome, Ben is highly intelligent, but has many social and behavioral challenges. “They do seem so normal at times. These kids get over-stimulated and then it's when their disability really comes out,” says Angie Smous, Ben’s mother.

Smous' other two children are also on the autism spectrum. Sydney is diagnosed with a mild case of Asperger's, while the youngest, Pete, is considered mildly autistic.

Although teasing is often common for kids with autism, both Smous and Cichoracki say other adults can be just as critical. “People look at you like what's wrong with you, why can't you control your child!” says Smous.

Cichoracki adds, “There was one lady at the gym when he was there, snatched her kid up and ran away to the other side of the room and it took me awhile to figure out, 'Oh my god, she thinks he's toxic, she thinks he's catchy.’ As a mom that cuts you to the bone.”

As for Cichoracki’s son Patrick, he's in a regular classroom at Bittersweet Elementary, but accompanied by an assistant at all times.

Meantime, the Smous’ have decided to home school their son Ben, until some of his behaviors have improved.

Experts at the Logan Center tell us many autistic children and teens can be good "escape artists" or have a knack for sneaking away. That's one of the reasons there are some programs in place to help train law enforcement officers to recognize autism. This comes in handy when police are dealing with an autistic person that might be displaying violent or threatening behavior. The Logan Center has hosted several training events for local law enforcement.

In part two of “Autism: Understanding the Puzzle”, we’ll have more on what types of therapies both families have tried. Also, a look at the importance of getting an early diagnosis for autism.

WNDU has complied a list of links that might help families dealing with autism. The links are listed below.


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Posted by: Iesha Location: Prince George on Feb 17, 2008 at 01:21 PM
Hi, My name is Iesha and i have autism and epilepsy. I spent the first 13 years of my life not knowing that i had autism. I went to public school with a B average.Now the Ministry beleaves that i can not handle the real world. But my family feel;s with the help of other families dealing with autism we can make together. The information that we have retrieved from your web site makes us feel like thier is hope and help out thier we just have to research. Thank you for sharing your stories we needed some positive in our lives. Thank you Iesha and gramma.

Posted by: Mercury Autism Location: S. B. on Feb 11, 2008 at 01:08 PM
Attn Anon: It has been proven that children with autism/mercury toxicity can have been helped. Read up on autism at mercola.com

Posted by: Tara Location: Mishawaka on Feb 7, 2008 at 08:20 AM
I have TWo boys with Autism... they have two seperate fathers. We have done gentic tests to check their chromosones for damage...none. Right now no one knows why, but it is a growing issue. There is also a thing that is called the Autism Spectrum Disorder. Autism has a broad and wide umbrella. If you are a parent of a child with this disorder, you know how diffucult it is. When my boys were little, I had no idea why he couldn't talk, wasn't doing what other were. It took First Steps to finally help me out, but after three, nothing, they drop you off on your own. I dont have the means to give my boys the sensory diet materials, money becomes an issue as well. I have even tried to go to Logan, and they didnt help either. The only one's that have helped at all is the PHM school system. Try having two kids with this issue, not fun, but in turn it's a good learning tool. I love my boys and wouldn't want them to be anyone else bu themselves.

Posted by: Nancy Location: DeRosa on Feb 7, 2008 at 06:43 AM
Thank you WNDU for bringing Asperger's Syndrome to the public's attention. I am the parent of a young adult daughter with this disorder. Since her diagnosis when I tell people what she has I usually get a puzzled response. Perhaps your presentation will assist our neighbors in understanding this part of the autsim spectrum.

Posted by: lucy Location: south bend on Feb 6, 2008 at 03:18 PM
spelling correction for my earlier post:Asberger's

Posted by: lucy Location: south bend on Feb 6, 2008 at 02:42 PM
Hey Josh, just checking to see if you had checked the medical diagnostic book yourself? I just took a psychology class last semester-Life Span Development, and I don't remember my professor saying that it is a disorder! Aspberger's Disorder? I'm pretty sure it's Aspberger's Syndrome

Posted by: Anonymous on Feb 6, 2008 at 02:41 PM
Mercury has not been in vaccines for a number of years. Get your fact street before a statement is made. Also there is some research being done on a possible genetic disordered causing this disease.

Posted by: Christine Location: Goshen on Feb 6, 2008 at 02:17 PM
Info on local support group for parents of kids with Aspergers at http://www.adnetonline.org/:/PDF/AS%20Parent%20grp%20brochure.pdf

Posted by: R.A. Location: Elkhart on Feb 6, 2008 at 02:16 PM
So much money is being spent on trying to figure out what causes Autism but not enough money is being spent on treating the disorder. Medical bills, medical testing and prescriptions are just a few areas where families need help. Over a period of just a few years the amount is staggering. If your family income is above the medicade limit there is very little help to be found elsewhere. Families are going without just so their Autistic child gets the treatment and medication he/she needs. Its a never-ending cycle and something needs to be done about it.

Posted by: Gort Location: Venus on Feb 6, 2008 at 01:55 PM
It's an institutional society that thinks you are not valid as a person until an institution declares you to be a type. He has a "disorder", so it's ok that he doesn't fit in, we don't have to bully him (kids and teachers). Uh, right.

Posted by: Winston Location: sb on Feb 6, 2008 at 01:49 PM
It has been documented by a number of reports that Einstein had signs of Asperger's from an early age. -WNDU.com Those reports are other news reports, not scientific journals, and it's still made clear that it's only speculation. But you say specifically, "But did you know both the physicist and comedian had or have forms of autism?" What makes this a big deal is that it reflects the kind of thinking that, errm, regular folks, are in the habit of... creating rumor, getting the story wrong as it passes from one person to the next, not keeping the difference between fantasy and reality... This is a problem, not for this series, perhaps, but for society at large. So journalists should guard against it. It's the habit of "everyday folk" to hear, "Isaac Newton hated small talk... dude! Isaac Newton was autistic!" Everyday folk think that we live in evil times because today we have media tech. on the scene where news is happening. It's a problem that really doesn't need to get worse.

Posted by: gail Location: valparaiso, in on Feb 6, 2008 at 11:30 AM
I have a daughter with aspberger's syndrome, and we've had our share of problems with the school where she attends. They approached us with concerns, and after we aquired a diagnosis, the school dropped the ball. They decided the issue was ours and parenting skills was in order. Somehow we were at fault, and we were expected to control it. Though I truly believe that learning how to parent my daughter would be an asset, I also believe that her condition is not a result of our parenting skills. I'm not responsible for the many sensory issues she demonstrates. I truly believe the struggle is harder for those who suffer from the higher functioning forms of austism because expectations are higher because these kids look normal. Why don't you try to address the struggles I've mentioned above. If not, any suggestions? Is there anybody out there who has struggled with a similiar situation and rose above it? How did you accomplish it? I would appreciate any offer of support and direction. T you

Posted by: Josh Location: Plymouth on Feb 6, 2008 at 11:09 AM
Asberger's is a disorder not a syndrome. You might check the DSM-IV-TR for diagnostic criteria.

Posted by: C Location: SB on Feb 6, 2008 at 10:57 AM
Einstein had autism? This is speculation at best. It's impossible to diagnose a dead person. Autism is an important issue, and I would hope that responsible journalists would clearly identify what is fact and what is conjecture.

It has been documented by a number of reports that Einstein had signs of Asperger's from an early age. -WNDU.com


Posted by: Kathy Location: New Carlisle on Feb 6, 2008 at 10:51 AM
Thanks Sarah for bringing the subject of Autism to viewers. I have a 3 yr. old grandson who suffers from a form of autism, he loves to watch videos. of course I try to keep up with the subject, I found a website www.teach2talk.com co-founded by Jenny McCarthy. They have some wonderful videos that will help with alot of the challenges these children face and my grandson loves them and they have also helped him too. Thanks again!!

Posted by: Linda Location: silver lake indiana on Feb 6, 2008 at 07:43 AM
I have a 10 year old with Autism he was dignosed when he was 1 and a 1/2 years old he is in special needs class and gets alot of help! Its sad that he has it but we are dealing with it! He crys, talks to himself and doesnt play with others he is now a 4th grader! his name is James! I know how other parents feel about Autism! Im a parents with 3 kids and my 10 year old is the one with Autism! Hes ding good in school hes just behind Autism kids are smart! i read on Autism and you can also read on Autism on www.autism.com! I think Autism kids can be fun to work with! so parents that have Autistic kids just think positive! My son likes music he rocks and trys to sing! he can talk but not much and if he wants something he points most of the time! Or he crys! he just learned how to write his name this year 2008! Hes a good kid! I hope all parents that have kids with Autism do their best and encourage their kids! My son also has Cerbal palsy he can walk but not along period of time!

Posted by: mother of 2 Location: mentone on Feb 6, 2008 at 07:42 AM
I have a grandson that is autism to me he is a very special child. I love him to death. I treat him just like i treat my other 5 grandson he is special in grandmas eyes.

Posted by: Jennifer Location: Riley Hospital on Feb 6, 2008 at 07:25 AM
I thank WNDU for this report. The more people learn about autism the easier it will be for children to be understood and accepted as they grow up and become adults with autism.

Posted by: Mercury Autism Location: S. B. on Feb 5, 2008 at 11:35 PM
Read what Dr. Mercola has to say about the link between mercury and autism at mercola.com

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