More than half a million children under 15 have a severe communication disorder that impairs their ability to speak with others.
Now, new technology is giving them a voice of their own.
When Shannon Ward came into the world three months early, her mom knew she would be special.
Janine Blythe, Shannon's mom, says, "She was always just aware, alert, watching."
While her mind was active-physically, Shannon's development was delayed. Diagnosed with cerebral palsy, Shannon could not speak.
Janine Blythe says, "so she would vocalize for you, you know, squeal with delight, but she could not say, mom, dad."
At age nine, she was using assistive technology to help her communicate.
Shannon says, “I think everyone deserves to be heard."
The adult robotic voice does not match Shannon's age, 13, or her personality.
Janine says, "and there's not really a lot of choices for these kids."
That is why Doctor Tim Bunnell and his team at Nemours are working to give kids like Shannon a voice of their own for the first time.
Dr. Bunnell, Principal Research Scientist and Director at the Center for Pediatric Auditory and Speech Sciences says, "We take recordings of natural speech, chop them up into very small pieces, and then paste them back together again in novel ways."
For those who cannot speak words, the focus is on vowel-like sounds.
Dr. Bunnell says, "Perceptually we are tuned to listen to the vowels to understand the vocal identity of a person."
Characteristics of those sounds, such as the child's pitch and voice quality, are recorded and blended with a donor child's voice to build a new voice.
Shannon says, "I think everyone deserves to be heard and it feels great to have a voice that matches who I am."
The technology used to create a new voice for children like Shannon, was originally developed for voice banking.
In the next three-to-five years, the technology will be able to calculate the child's voice as they age, so their voice will grow along with them.
GIVING SHANNON A VOICE OF HER OWN
BACKGROUND: A communication disorder is an impairment in the ability to receive, send, processed, and comprehend concepts or verbal, nonverbal, and graphic symbol systems. A communication disorder range in severity from mild to profound and it can be evident in the processes of hearing, language, and speech. Approximately 14 million Americans have a speech, voice, or language disorder. Speech and language disorders can result from hearing loss, birth-related conditions, a learning disability, or physical conditions. The disorder may result in stuttering, problems with articulation, voice disorders, or aphasia. People with severe speech and language disorders may be nonspeaking. (Source: http://www.accesspress.org/2003/12/assistive-technology-for-communication-impairments/ and http://www.asha.org/policy/RP1993-00208/)
AAC: One common type of adaptation used by nonverbal and non-comprehensive speakers is an Augmentative and Alternative Communication (AAC) system. This type of assistive technology refers to aids, strategies, and techniques designed to enhance a person's existing communication skills. These AAC systems may be laminated paper with pictures or words, electronic devices capable of adaptive access and voice-to-output, or computer based systems with vocal synthesis. AAC is often used to refer to formal communication devices like sign language, communication boards or voice output communication aids (VOCAs), but it can include less sophisticated means of communication including facial expressions, non-speech vocalizations, idiosyncratic gestures, etc. There are a number of congenital and acquired neurological and neuromuscular impairments that can cause an inability to speak and require patients to use assistive communication devices. They include cerebral palsy, autism, developmental apraxia of speech, traumatic brain injury, and spinal cord injury, among others. (Source: http://www.accesspress.org/2003/12/assistive-technology-for-communication-impairments/ and Nemours/Alfred I. duPont Hospital for Children press release)
SPEECH SYNTHESIS: Nemours Speech Research Laboratory at Alfred I. duPont Hospital for Children developed the ModelTalker System. It is a speech synthesis software package designed to benefit people who are losing or who have already lost their ability to speak. It allows patients with ALS and other conditions to use a synthetic version of their own voice for communication, or to choose a voice best suited for them. The system uses representative segments of recorded speech to create a unique synthetic voice. The voice is virtually unlimited, which means it can be used to express almost anything. The voice "banking" process is guided by the ModelTalker Voice Recorder. Once this process is done, the patient will be able to create a synthetic voice by uploading their recordings to a voice generation site. The complete ModelTalker System is in the early stages of commercial development. (Source: http://www.modeltalker.com/)
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Nemours Health & Prevention Services