Roughly 80 percent of babies born with Spinal Muscular Atrophy die before their first birthday.
On Saturday, a special child from Osceola afflicted with the disease turned one.
We first told you about Baby Ella in January.
Back then she was five months old and her parents weren't sure if she'd make it to see a birthday.
Her parents, Dan and Erica Hunt, live every day not knowing if it could be their princess's last.
Nearly 100 percent of SMA babies don't live to two-years-old.
But today, fittingly during SMA awareness month, the family can celebrate.
As we mentioned, it's SMA awareness month and the Hunts ask everyone to put a white ribbon around a tree in their yard as a symbol of hope and awareness for the disease.