Young girl overcomes rare syndrome
Young girl overcomes rare syndrome Save Email Print
Posted: 6:57 PM Mar 27, 2008
Last Updated: 7:21 PM Mar 27, 2008
Reporter: Maureen McFadden
Email Address: maureen.mcfadden@wndu.com

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Most of us have days where things are not going quite right and we might feel sorry for ourselves.

I recently met a little girl who could feel sorry for herself, but doesn't.

Trinity Teeters is the only female in the world with a rare syndrome and can dance circles around most of us.

Trinity is like most other seven-year-old girls. She loves her baby sister Elliana, loves coloring and reading, but Trinity is not like any other little girl in this world.

In fact she's the only female in the world with one of the longest-named syndromes in the world: Tibial aplasia, lower extremity mirror image polydactyly, brachyphalangy, craniofacial dysmorphism and genital hypoplasia: further delineation and mutational analysis.

On closer look, you will notice that Trinity’s hands have no joints and, unlike most children, she can take off her legs.

Trinity’s parents, Hope and Jason Teeter, learned when Hope was pregnant that their first daughter would have serious birth defects.

“The doctors told us they didn’t think she would be compatible with life,” explained Hope. “They recommended termination at that point.”

An abortion was out of the question for the Teeters. They decided they would deal with any child God gave them; and they have.

A geneticist from British Columbia finally gave them Trinity’s diagnosis. She also has sight and hearing problems, and has had a number of surgeries.

“She’s averages about a little more than one a year. She’s had six total,” said her father, Jason. “Most of them have been the type to try to release the contracture out of her joints.”

Hope says making the decision to amputate Trinity’s leg was the hardest.

“We knew that she wouldn’t be able to walk otherwise. She walks with a prosthetic leg and she has an orthotic on the other side,” said Hope.

And this little bundle of personality is comfortable with her legs on, or her legs off.

The Teeters give much of the credit to Trinity’s weekly physical therapy sessions she has had since infancy years at St. Joseph Regional Medical Center.

“It’s just been tremendous. The staff here has had experience dealing with arthrogryposis. We just feel so fortunate and blessed,” said Jason.

The first grader, who doctors said would not be compatible with life is reading at a third grade level.

And despite having no joints in her fingers can put puzzles together, has learned to walk up and down stairs, and even gets to play soccer.

As she grows, Trinity will likely face more surgeries, but her parents say she is a fighter.

“She’s very tough,” said Hope.

Jason agrees, “Trinity has got an amazing little attitude, just some of the obstacles she has had to overcome is heroic.”

From a baby doctors warned would not be “compatible with life” to the best reader in her first grade class.

The Teeters say they have every faith that Trinity will continue to push herself and reach every goal she sets.

Trinity will continue therapy once a week at St. Joseph Regional Medical Center.

The Teeters are grateful for both their daughters and are thankful that Trinity is in good care.

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Posted by: Laura Location: Cincinnati, OH on Apr 8, 2008 at 07:40 PM
What a beautiful young lady Trinity has become! I remember the scary and difficult time the Teeters went through and this video clip shows what a miracle she truly is! God bless you all!

Posted by: Stacey Location: Detroit, MI on Apr 4, 2008 at 02:02 PM
WOW! This is one of those stories that you want to ask God why did it have to be her. However whenever she shows her determination and does things that others said would never be possible. You know why. It was because God knew that she could handle it and that she had all of the support that she needed to make a difference in the world.

Posted by: Laura Location: Indianapolis on Mar 30, 2008 at 01:31 PM
Our daughter, Hailey, was in aquatic therapy with Trinity years ago through SJRMC. She is an amazing girl with an equally amazing family. It was great to read this story and find that Trinity is doing so well. She has a great support system, great therapists,and awesome family! Keep going Trinity!

Posted by: gidge dunn Location: niles, mi on Mar 30, 2008 at 12:19 PM
I have had the privilege to work with "Trinie" at the Therapeutic Equistrian Ctr., in Buchanan. Where she rides a horse just like the rest of the riders. I, too, am overwhelmed with what this little bundle of energy and talent can do.

Posted by: Jeff Location: South Bend on Mar 28, 2008 at 03:29 PM
This is truly an inspirational story. The Teeter family understands the greatest gift there is, unconditional love. Now Trinity will be able to live a beautiful life and recognize her God given gifts!

Posted by: Lisa Location: Mishawaka on Mar 28, 2008 at 12:33 PM
God bless this litte angel and her family!

Posted by: LCB on Mar 28, 2008 at 09:56 AM
We are blessed by Trinity. And to think some people wanted to kill the little girl?

Posted by: Svengali Location: Elkhart on Mar 28, 2008 at 08:45 AM
These people should remind us all how blessed our lives are......and how easy we have it....

Posted by: Margaret Location: South Bend on Mar 28, 2008 at 06:08 AM
What a wonderful girl and amazing parents. Thank you for choosing life for your daughter.

Posted by: Baker Location: leesburg on Mar 27, 2008 at 10:46 PM
Thank you for one more beautiful reason to value life! Be blessed Trinity.

Posted by: christie Location: granger, indiana on Mar 27, 2008 at 09:02 PM
I know the Teeters and am so happy to see Trinity doing so well. She is a great little girl with great parents who have helped her to overcome a lot.

Posted by: Margaret Location: South Bend on Mar 27, 2008 at 07:34 PM
What a blessing from God! I wish some of the kids that I teach that complain about such little things would take a lesson from Trinity.


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