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Updated: 7:21 PM Mar 27, 2008
Young girl overcomes rare syndrome
Trinity Teeters is the only female in the world with a rare syndrome and can dance circles around most of us. Posted: 6:57 PM Mar 27, 2008Reporter: Maureen McFadden Email Address: maureen.mcfadden@wndu.com |
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Most of us have days where things are not going quite right and we might feel sorry for ourselves.
I recently met a little girl who could feel sorry for herself, but doesn't.
Trinity Teeters is the only female in the world with a rare syndrome and can dance circles around most of us.
Trinity is like most other seven-year-old girls. She loves her baby sister Elliana, loves coloring and reading, but Trinity is not like any other little girl in this world.
In fact she's the only female in the world with one of the longest-named syndromes in the world: Tibial aplasia, lower extremity mirror image polydactyly, brachyphalangy, craniofacial dysmorphism and genital hypoplasia: further delineation and mutational analysis.
On closer look, you will notice that Trinity’s hands have no joints and, unlike most children, she can take off her legs.
Trinity’s parents, Hope and Jason Teeter, learned when Hope was pregnant that their first daughter would have serious birth defects.
“The doctors told us they didn’t think she would be compatible with life,” explained Hope. “They recommended termination at that point.”
An abortion was out of the question for the Teeters. They decided they would deal with any child God gave them; and they have.
A geneticist from British Columbia finally gave them Trinity’s diagnosis. She also has sight and hearing problems, and has had a number of surgeries.
“She’s averages about a little more than one a year. She’s had six total,” said her father, Jason. “Most of them have been the type to try to release the contracture out of her joints.”
Hope says making the decision to amputate Trinity’s leg was the hardest.
“We knew that she wouldn’t be able to walk otherwise. She walks with a prosthetic leg and she has an orthotic on the other side,” said Hope.
And this little bundle of personality is comfortable with her legs on, or her legs off.
The Teeters give much of the credit to Trinity’s weekly physical therapy sessions she has had since infancy years at St. Joseph Regional Medical Center.
“It’s just been tremendous. The staff here has had experience dealing with arthrogryposis. We just feel so fortunate and blessed,” said Jason.
The first grader, who doctors said would not be compatible with life is reading at a third grade level.
And despite having no joints in her fingers can put puzzles together, has learned to walk up and down stairs, and even gets to play soccer.
As she grows, Trinity will likely face more surgeries, but her parents say she is a fighter.
“She’s very tough,” said Hope.
Jason agrees, “Trinity has got an amazing little attitude, just some of the obstacles she has had to overcome is heroic.”
From a baby doctors warned would not be “compatible with life” to the best reader in her first grade class.
The Teeters say they have every faith that Trinity will continue to push herself and reach every goal she sets.
Trinity will continue therapy once a week at St. Joseph Regional Medical Center.
The Teeters are grateful for both their daughters and are thankful that Trinity is in good care.
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