Autism: Understanding the Puzzle - Part II Save Email Print
Posted: 11:00 PM Feb 6, 2008
Last Updated: 4:52 PM Feb 7, 2008
Reporter: Sarah Platt
Email Address: sarah.platt@wndu.com

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It's sometimes referred to as the "hidden disorder." We're referring to the autism spectrum. Often times there are no obvious signs of the condition to the outside world, yet the disorder can completely inhibit a person from communicating with others.

In the last decade, a growing number of children have been diagnosed with autism. NewsCenter16's Sarah Platt takes a look at some of the ways families are dealing with an autism diagnosis.

Autism is a neurological condition that is almost as puzzling today as it was when it was first pointed out in the 1940's. Over the years, there have been many advancements in therapy and medicine to treat symptoms, but a cure for autism still seems to be years away.

Twice a week, Patrick Cichoracki attends speech therapy with a speech pathologist. First Steps diagnosed him with autism shortly before he turned three.

“He's actually a very intelligent little guy who notices things that you wouldn't expect him too,” says Patrick’s speech pathologist Susanna McKinley.

Autistic children like Patrick don't see, hear, and feel the same way the average person does. It’s like their senses are on overload. They also tend to be non-verbal. Patrick uses a special speech device or "talker" to communicate his sentences.

McKinley says he's made some amazing strides. “He's beginning to initiate his own sentences without any prompting now. When he needs something from his mother now, he'll go up and produce a full sentence like a child age two would do,” adds McKinley.

“It was only two years ago they said he'd probably never be able to speak, that he would rely on that device his entire life. Now he's trying, he can say momma, so that's good for me,” says Cichoracki.

Besides speech, the Cichoracki's have also tried behavioral, occupational, even physical therapy. “We tried everything that didn't physically hurt him or bankrupt us, we tried it, tried gluten-casein free diet, tried music therapy, softball lessons, pursuing swimming lessons,” adds Cichoracki.

Experts at the Logan Center tell NewsCenter16 that an early diagnosis and treatment can greatly improve a child's prognosis. “You have a much better chance of helping develop those neurological connections, that will help them benefit from social interactions, language development, academic behaviors,” says Dan Ryan, Director of the Regional Autism Center at Logan.

“The younger you start the better,” adds mom Angie Smous, “The most improvement we've seen is with our younger one. He had some early signs, where our other two didn't as much,” says Smous.

With three kids on the autism spectrum, the Smous family has tried many therapies and is now starting the gluten and casein free diet. The diet restricts certain grains, starches, and dairy products. Some parents have seen dramatic improvements in their children after placing them on this diet.

Meantime, sensory activities like the trampoline and swing have been helpful to the Smous' youngest, Pete.

“The first time we put him in a swing, he said his first five word sentence as soon as he got out,” says Smous.

“Our daughter is really sensitive to noise. In preschool, if somebody was whispering, she'd say 'no whispering too loud!!'”

The stress of autism can take its toll on everyone in the family. “Very stressful, very stressful, but that comes and goes, it's getting better all the time,” reflects Smous.

“Some kids with autism don't like to be touched or hugged because they have increased sensory overload,” adds Ryan.

Reports show divorce rates are sometimes as high as 80% for couple's with autistic children. “One of the most effective ways to help a parent is to connect them to another parent who is walking in the same shoes that they are,” says Ryan.

“Nobody signs on to work this hard, but you have to. It's what you've been given and when you get these successes, it's completely a miracle,” contemplates Cichoracki.

Like other parents of autistic children, Cichoracki's ultimate goal is to get her child as high functioning as possible. And as these autistic children become adults, they're faced with the challenge of finding a job or even living on their own.

38-year-old Paul Warren of South Bend has autism. Paul is unable to live on his own and is still under the care of his parents who are in their 70's. Despite his challenges, Paul has been able to hold down a job with the same company for ten years.

While autistic children today have many therapy opportunities, many of those weren't around when people like Paul warren were young. Because of an insurance mandate, insured Indiana residents are covered for many autism treatments. A similar mandate is being proposed in the state of Michigan, as residents are not typically covered for autism therapies.

With or without insurance, though, many families struggle to pay for therapies that their autistic children need.

Coming up Thursday night on NewsCenter16 at 11, Sarah will have the third and final part of her series, “Autism: Understanding the Puzzle.” She'll have more on Paul Warren, an adult living with autism.


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Posted by: Mercury Autism Location: S. B. on Feb 12, 2008 at 06:46 PM
Anon: Do your homework, some doctors and medicine companies are in denial due to the fact that mercury autism lawsuits will payout bigger than tobacco lawsuits. Do your homework, mercury is still being used today to preserve some vacinnes because they have nothing else to use as preservatives. Also mercury vapors can be passed on to the child from the mother. Look up on the web and study Mercury Autism and Dr. Mercola at mercola.com and open your eyes. Children have been and are being helped by removing the mercury if they are toxic. Testing for mercury is simple and inexpensive. If you have a child that is not developing they deserve to be tested. After the removal of the mercury your child may learn to talk normal.

Posted by: Anonymous on Feb 7, 2008 at 02:37 PM
I can find you 10 other studies that say Mercury is not the cause for autism. It is likely the right mix of genetical and environmental factors that attribute to the disorder....the data from such studies needs to be studied a bit closer because the authors often times make faulty and misleading assumptions, plus the data can be very easily presented in a manner that supports their hypothesis...just something to keep in mind. My goal is not to discourage anyone as I know being the parent of a child with autism is a strenuous job, but there haven't been any solid data to indicate one way or the other...just being a realist.

Posted by: Sarah Platt Location: WNDU-TV on Feb 7, 2008 at 01:15 PM
To Barb. In part 3 (which airs tonight), we do mention that the Medicaid waiver waiting list for those with disabilities like autism is as long as ten years. Appreciate your comments.

Posted by: Mercury Autism Location: S. B. on Feb 7, 2008 at 01:13 PM
Mercury toxicity should not be over looked as a cause for autism. Studies have proved that autistic children tested positive for mercury have improved after removing the mercury. Look up Mercury/ Autism at Dr. Mercola's website www.mercola.com

Posted by: Yvonne Location: Howe on Feb 7, 2008 at 12:17 PM
It's nice to see a story on Autism.. my son is 14 and has Aspergers.. Autism spectrum disorder...

Posted by: Anonymous Location: South Bend on Feb 7, 2008 at 11:49 AM
I believe there is a 10 year waiting list on the Autism waiver through the state, but that's not the case for Medicaid/SSI.

Posted by: Mike Location: Mishawaka on Feb 7, 2008 at 11:09 AM
I appreciate the coverage you are presenting on autism, but there is a large piece of helpful information that is missing from your reports that I think is worth mentioning. Individuals with autism who receive true behavioral services have the greatest opportunity for improvement. There are many providers who claim to provide behavioral services, but they are not fully trained to provided these services. Families should look for behavioral providers who employ Board Certified Behavior Analysts (BCBA). Families in Indiana should also contact their local BDDS office (Bureau of Developmental Disability Services - 574.232.1412 in the South Bend area) for more information regarding funding and providers. I highly recommend that you provide your viewers with the following links as well to begin their quest towards obtaining effective help for their children...as many of the services available are truly ineffective. www.abainternational.org www.behavior.org www.behavior.org/autism

Posted by: barb on Feb 7, 2008 at 10:25 AM
I don t know if you happen to catch channel 16 news reports recently in the morning and evening about Autism slated "the puzzle of Autism"? I find it very interesting when they mention early intervention and how there is so much help for Autism but they fail to mention the 10 year Medicaid waiting list. They also don't mention that if you live in a big city such as South Bend or Indianapolis the services are plenty but if you live in a rural community such as ours it quite the opposite. I think the Autism Society should call Autism " a maze" instead of a puzzle because a puzzle as based on the assumption that all of the pieces are there and all you have to do it put them together. I think it feels more like a maze where you hit the wall with no end in sight? ****i am a special needs teacher and a parent wrote this to me. thought you might find it interesting.

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