A "mystery" disease has a Philadelphia family reaching out for help.
One of their sons died from a genetic disease so rare that doctors do not even have a name for it.
Ben Wallace has the same genetic disease that took the life of his brother Zach.
Doctors say Ben's problems are triggered by a missing protein.
While doctors search to find the exact one, they treat Ben by replacing all his proteins.
He gets plasma transfusions every week.
Dr. Edwards Attiyeh, a pediatric oncologist, stated, "The body begins destroying blood cells. Clots end up forming and you can have damage to your kidneys and your brain."
Ben’s father, Don Wallace, said, "It's just so hard to believe he's the only one in the world and maybe through more people viewing this, that maybe someone will be able to help."
The family took their boys to the Mayo Clinic and Johns Hopkins Hospital.
Although doctors can treat Ben’s symptoms, no one can give the disease a name.