Goshen couple with visually impaired daughter has China in their sight
Goshen couple with visually impaired daughter has China in their sight Save Email Print
Posted: 6:34 PM Jun 20, 2008
Last Updated: 7:15 PM Jun 20, 2008
Reporter: Maureen McFadden
Email Address: maureen.mcfadden@wndu.com

A | A | A

As parents, most of us go to great lengths to help our children.

But what about flying half way around the world for an experimental treatment?

I met up with a Goshen couple who hopes their young daughter may one day see, and they have China in their sight.

Seventeen-month-old Eleanor Habecker jabbers like any other toddler, happily repeating words for her mom and dad, Phil and Liz.

But unlike other little girls, Ella has her own website -- www.eleanorshope.com.

You see, Ella can't see like most other babies her age.

She was born with a condition called optic nerve hypoplasia.

"Her optic nerve is too small, and so it means that her brain is okay and her eyes are okay, it's just the optic nerve in between," Liz explains. "It's just things aren’t getting through to her."

Ella sees very little, which has delayed her walking and the ability to feed herself.

On how much Ella is currently able to see, Phil says "Maybe about six to eighteen inches in front of her. Shapes, and she has light perception."

Liz adds that they aren’t sure whether or not Ella can even see colors.

That's why the Habeckers will soon be traveling half way around the world for an experimental treatment.

A trip that will take them from Indianapolis to New Jersey to Hong Kong, and then to their final destination: Hangzhou, China.

For a procedure pioneered in China; a procedure the Habeckers have heavily researched.

"They do stem cell infusions from umbilical cord stem cells from healthy, live births. And they do one infusion into the blood to make sure that her body can handle it, and then they do four more into the spine," explains Phil.

Helping Ella develop the nerves already there.

"Every child who has gone there has had improvements, so it's a 100-percent improvement rate so far," says Liz.

Phil is a teacher and wants to share normal times with Ella.

"We're both really big readers, so we'd like her to be able to read print,” he admits. “For a while we weren't even sure whether she would be able to navigate rooms, and for a lot of people that have this disorder, they can't."

"The hardest part is that she can't look at us in the eyes,” Liz says. “That's really hard."

The couple hopes that, one day, Ella will be able to “get around and be just like a normal child.”

To see her daddy when she gives him a kiss, to enjoy the scenery while on a walk, and to see her visitors as she waves goodbye.

The procedure costs 35,000 dollars and isn't covered by insurance.

To help, you can make a donation to any First Source Bank.

There's also a pulled-pork fundraiser at Dana J's Deli from 10:00 a.m. to 2:00 p.m. in Goshen on Saturday, June 28th.

For more on that event, as well as continuing updates on Ella’s progress, visit her website at www.eleanorshope.com.

We promise to update you on Ella's progress.

More Stories
ATF agents raid the Warsaw home of a known white supremacist

Granger man turns hobby into business with D'Avella Family Winery

Update: Woman and children recovering after car crashes into store window

U93 kicks off annual Roofsit campaign to help prevent child abuse

Part of Cleveland Avenue closed in St. Joe

Man hospitalized after motorcycle accident

80-year-old Niles man shot, robbed at home; suspects arrested

Golfer Chris Smith and family still in shock over weekend accident

Post Your Comments
First Name:
Location:
Enter Comments: characters left
Email (optional):
By posting this comment I have read and agree to the Terms of Use and Privacy Policy:
You must agree to the Terms of Service to continue.
Read Comments
Comments are posted from viewers like you and do not always reflect the views of this station.
Posted by: Norma Location: Tennessee on Jun 25, 2008 at 06:15 PM
I also have a grandson with the same condition and am considering taking him..Please donate and give her the gift of sight...May God Bless you in your efforts while taking this long journey.

Posted by: Laurie Location: Niles on Jun 21, 2008 at 09:16 AM
After reading this story, I went to the website on China's stem cell work http://www.stemcellschina.com/ The videos speak volumes. We are supposed to have the best medical care in the world? I think not, when people all over the world are flocking to China and having incredible results. No FDA, trials, etc. We regulate and moralize ourselves out of gaining cures to diseases. It is so sad that these families who go to China, have all had to fundraise to do so. Insurance will pay hundreds of thousands on "treatment" when less than $50k they can cure. Best wishes to the family on their journey towards health and sight for their daughter.

Posted by: Happy for you on Jun 21, 2008 at 01:24 AM
That's so neat. I hope everything works out for you and your little girl.

Posted by: worker Location: indiana on Jun 20, 2008 at 09:20 PM
I clicked on the link at the bottom of the story and it came back page not found.

Posted by: Margaret Location: South Bend on Jun 20, 2008 at 08:11 PM
Your daughter is beautiful. I hope all goes well and will keep her in my prayers. Too bad that insurance will not pay for even a portion.


Five Day
WNDU News Poll
There are currently no active polls at this time.
Click here to view other polls on our site and past poll results.
MichianaGuide.com