Stevensville child growing old at a young age Save Email Print
Stevensville, MI
Posted: 6:04 PM Jun 12, 2008
Last Updated: 7:02 PM Jun 12, 2008
Reporter: Marcie Kobriger
Email Address: marcie.kobriger@wndu.com

A | A | A

Growing old takes its toll on everyone's body, but at just 20 months old a Stevensville boy is already dealing with the side effects of aging that are more typical of someone eight times older.

Spend an afternoon at the playground with Cameron Howard and you will see he acts like most boys his age.

"He's a pretty happy-go-lucky kid, he really is. He's always laughing," Jason Howard says of his son.

"He pretty much behaves just like any other kid his age; cognitively and emotionally he develops just like any kid his age. So it's just the physical things that are different," his mom, Stephanie, adds.

The couple first noticed Cameron was different from other kids when he was just a month old. He was considerably smaller than other babies his same age.

"From there we tried to figure out what was causing the poor weight gain. We ended up going to three different hospitals," Stephanie recalls.

After six months, doctors finally diagnosed little Cameron with Progeria.

It is an extremely rare gene mutation which causes tight skin, poor weight gain, stiff joints, and other conditions commonly associated with aging.

"They also get arthritis, as well as some of the other aging things, and they predominantly pass away from heart disease," says Stephanie. She tells us, on average, a child with Progeria lives to 13.

Progeria affects only 12 other children in the United States.

It may seem like a grim diagnosis to many parents, but once Stephanie and Jason found out what they were dealing with they became proactive.

"It was a relief to get the diagnosis, and just to finally have that part of it over with and to know how to deal with it and kind of move forward," Stephanie tells us.

The Howards are involved with the Progeria Research Foundation, and recently opened their own chapter. They say the work the foundation is doing gives them hope for Cameron's future.

"To get from being founded to finding the gene to having a drug trial in less than ten years is amazing. So we are very hopeful that the research foundation is going to be able to find a cure," Stephanie says.

Clinical drug trials, with a drug used by terminally ill cancer patients, are underway right now.

The Howards hope this drug will prolong the life of the little boy they say has changed their outlook on life.

"I think it kind of refocuses you to what's really important. The main thing that I think we’re looking for is to make sure he's happy, and prolong his life, and to keep the quality of life as high as possible for as long as possible," Jason says.

The Howard family is planning a 5-K benefit run/walk next fall, in St. Joseph, Michigan.

For more information on how you can get involved with the run, learn more about Progeria, or see Cameron's website click on the Big Red Bar.

More Stories
Michiana drivers say its the start of snowy and slick roads

Poverty Here at Home: Part 3

Plymouth man says hospital records were found in open dumpster

Will Sysco build in Starke County?

South Bend man to serve 30 years for robbing, beating elderly woman

It's Official: Diggins to Notre Dame

Two men arrested for attempted robbery

St. Joseph still hoping to own iconic lighthouse

Post Your Comments
First Name:
Location:
Enter Comments: characters left
Email (optional):
Email will not be displayed on site. For station contact purpose only.
Read Comments
Comments are posted from viewers like you and do not always reflect the views of this station.
Posted by: Margaret Location: South Bend on Jun 14, 2008 at 09:20 PM
God bless both mom and dad and little Cameron. Maybe researchers will foind a cure soon. My prayers are with all of you.

Posted by: Lori Location: Niles on Jun 14, 2008 at 11:34 AM
"All part of God's plan"? That a cherished, happy child will most likely not reach adulthood? How can this be good in anyone's "plan"??

Posted by: Rare Genes on Jun 13, 2008 at 11:49 PM
Rare genes like this are over looked everyday and shouldn't be. I feel for the family because I also suffer from a rare gene disease HIDRADENITIS SUPPURATIVA that is over looked and has no know cure just a life sentance to pain. My prayers are with you all...

Posted by: Lauren on Jun 13, 2008 at 08:43 PM
poor thing! im crying. :(

Posted by: Rich Location: Granger on Jun 13, 2008 at 03:05 PM
This just crushes my heart. I have a 6-yr old that has special needs but nothing to the magnitude of this child. It is also very crushing to hear that this ailment is so rare. That makes it painfully hard to find any kind of treatment since there would be other issues to spend money on research. I hope a miracle happens because as you read the article, you realize that the parents are working so hard and lovingly to prolong his life but you already know the poor little angel will most likely not live long past the average age of 13 for those afflicted with Progeria. God bless you Cameron.

Posted by: Anonymous on Jun 13, 2008 at 09:32 AM
All part of God's plan.

Posted by: Garth Location: Canada on Jun 13, 2008 at 05:03 AM
Why not make his life as good as it csn be righ now because he's not going to get much older?

Posted by: Lynn Location: Mishawaka on Jun 12, 2008 at 11:08 PM
Cameron is lucky to have such wonderful parents who are handling the diagnosis remarkably well.

Posted by: Matthew Location: Warsaw, IN on Jun 12, 2008 at 11:01 PM
Just as Angie said, a beautiful little boy! Bless the parents for being so strong and positive through the entire ordeal. Keep up the positive attitude! Statistics are nothing.

Posted by: Brandon Location: South Bend on Jun 12, 2008 at 10:36 PM
Its always hard to hear about a child with a disease that as far as we know could be terminal. I pray with all my heart that there will be a cure for this precious child. God Bless this family.

Posted by: Sara Location: Granger on Jun 12, 2008 at 10:04 PM
Wow! How amazingly cute is he! I'll be praying for your family! I just want to pick him up and just love on that little boy!!! Best of luck to you! These kids are trully amazing!!!

Posted by: Mary on Jun 12, 2008 at 09:40 PM
I have three grandsons his age. My heart just aches for them. I praise their positive attitudes and offer up my prayers for a cure. He is a darling!

Posted by: H on Jun 12, 2008 at 07:57 PM
I have seen this disease on the news before and did not know how rare it really was. I would love to get involved in the run to support this lovely child and family. I am so glad he was born to such a loving, proactive, and caring family. Cameron's story makes me realize that when I have a bad day, it is so insignificant compared to what others are challenged with and overcoming.

Posted by: Angie Location: Granger on Jun 12, 2008 at 06:54 PM
What a beautiful little boy. I pray that they find a cure for him and others like him. My thoughts and prayers are with his family.

Five Day
WNDU News Poll

How do you think the Irish have looked so far this year?

They're where I thought they'd be
I thought they would be better
I thought they would be worse


MichianaGuide.com